Podcasts and webinars

All Podcasts pre-2020 can be found here

Double Vision: Seeing Family-centered Care from the Medical and the Parental Perspective

19 November 2024

Dr. Wade Shrader is The Freeman Miller Endowed Chair of Cerebral Palsy at the Nemours A.I. duPont Hospital for Children in Wilmington, Delaware, where he focuses his practice on the treatment of children with cerebral palsy and similar developmental disabilities.   He is also a Professor of Orthopedic Surgery and Pediatrics at Thomas Jefferson University and the First Vice-President of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM).  

Carol Mason Shrader is a Policy Director for the Delaware State Council for Persons with Disabilities and an author of a children’s book.  In 2008, her then 11-year-old son Mason created a blog — The Blessing Counter -- and encouraged her to write. His willingness to have his story told so that even just one family could find hope in the journey of raising children with Cerebral Palsy inspires her still. She has shared the story of her family around the world through her children’s book, “Helix Rolls Into A Sleepover,” where a cute little tortoise gives a glimpse into life with wheels.

Carol and Wade are parents to adult triplets, two of whom have Cerebral Palsy, plus a teenage daughter.

Transitioning out of CP-Achieve- ACU Occupational Therapy Students discuss Transition Project

16 October 2024

Blake Greuter is in his 4th year of study at Australian Catholic University (ACU) as an Occupational Therapist. He was inspired to become an Occupational Therapist after working as a swimming instructor for children with disabilities and working closely with many families over 4 years.

Kyla Tucker is in her 4th year of study at ACU as an Occupational Therapist. She was inspired to become an Occupational Therapist after being a consumer herself combined with her love of helping others.

Health service interactions by people with CP across the lifespan - 5 years of data from a single health network

18 September 2024

Professor Prue Morgan is a Specialist Neurological Physiotherapist with 14 years of academia experience after a 20 year clinical career working in Falls & balance clinic; acute neurosciences, and RCH. Pure is the immediate prior Head of Department, Physiotherapy at Monash University, having led the Department from 2011 to 2024. She is interested in Falls/mobility decline in adults with cerebral palsy (PhD topic), strategies to enhance physical health in adults with cerebral palsy and reasons for physical health decline in adults with cerebral palsy (hospitalisations). Her goal in the CRE is to identify effective lifestyle program/s to address health needs of adults with CP with a view to optimising participation

Including young people with complex communication needs in research by optimising informed consent procedures

18 September 2024

Jacinta Pennacchia is a speech pathologist completing her PhD at the University of Melbourne. She works with children and young adults in education and hospital environments. She supports young people to communicate and develop their self-advocacy skills. Jacinta is currently involved in research focusing on the mental health of young people with communication access needs. She enjoys bringing her clinical knowledge on augmentative and alternative communication (AAC) into her research around mental health assessment in this population.

Paralympic sport for people with cerebral palsy: a research update, opportunities and challenges

21 August 2024

Dr Iain Dutia is a lecturer in Physiotherapy at Australian Catholic University, an adjunct  research fellow at The University of Queensland and an honorary fellow at CP-Achieve. His main interests are in enhancing physical health in adolescents and young adults with disabilities, and his research to date has focused on increasing participation and enhancing performance in Para sport for athletes with high support needs.

The CycLink Partnership Project

10 July 2024

Dr Rachel Toovey is a postdoctoral researcher, Senior Lecturer and physiotherapist with the Physiotherapy Department at the University of Melbourne, and a CP-Achieve Research Associate. Rachel works with individuals, families, communities and organisations to create change and improve health through inclusive participatory research and evaluation centred around physical activity and sport. Rachel co-leads the Physiotherapy First Nations, Health Promotion & Equity teaching team.

Working together through co-design to make key principles for the CycLink cycling intervention

10 July 2024

John Carey is a physiotherapist, PhD candidate at the University of Melbourne and CP-Achieve Research Associate. He works clinically as a senior physiotherapist and team lead in a Young Adult Transition Service and Special Developmental School in Melbourne. His PhD topic focuses on fostering a supportive environment for young people with disability to participate in cycling. This includes working in partnership with people with lived experience of disability, practitioners and cycling organisations to develop resources and programs

From rehabilitation to recreation: Supporting young adults with cerebral palsy to exercise in community gyms

12 June 2024

Georgia McKenzie is a physiotherapist at the St Vincent’s Hospital Young Adult Complex Disability Service working with young adults with cerebral palsy to make the transition from the paediatric to adult world and a current PhD candidate with La Trobe University and CP-Achieve.  Georgia’s PhD is investigating the factors influencing gym participation for adults with cerebral palsy and how to best support participation in the gym.

Understanding the Physical and Mental Health, and Participation of Young People with Cerebral Palsy in Australia

22 May 2024

Dr Carlee Holmes is the senior physiotherapist at the Young Adult Complex Disability Service, St Vincent’s Hospital Melbourne and a Post-Doctoral Research Fellow at CP-Achieve team. Carlee is passionate about working collaboratively with families and young adults to enhance their physical and mental health.

Dr Sarah Giles is a Postdoctoral Research Fellow at CP-Achieve. Sarah’s clinical and research background is in mental health. Sarah has worked clinically in a range of health settings including chronic pain and women’s health

Exploring young adulthood: Experiences for adolescents and young adults with cerebral palsy (CP)

22 May 2024

Jacqueline (Jackie) Ding is a CP-Achieve PhD candidate at Monash University and a Project Officer at MCRI in the Centre for Community Child Health. Her PhD research focuses on understanding the experiences of young adults with cerebral palsy transitioning to adulthood and developing resources to support the transition. 

Co-designing chronic pain assessment for young people with cerebral palsy

20 March 2024

Nadine Smith is a physiotherapist who works in the movement program, Kids Rehab WA at Perth Children's Hospital and a CP-Achieve PhD student.  She has a special interest in children who have dyskinetic cerebral palsy and assessment of pain when children cannot self-report. Her recent research has focused on movement interventions for children to decrease pain.

Meredith Smith is a physiotherapist and a PhD student and lecturer in Physiotherapy at The University of Adelaide.  Meredith works clinically with people with cerebral palsy and other physical disabilities.

Riding the Waves of Change: From Research to Community Revolution: Unleashing the power of inclusivity by promoting beach accessibility for people living with disability and their families.

21 February 2024

James Czencz is a physiotherapist working in rural South West Victoria, an early career researcher at Australian Catholic University, Surf Lifesaver at Port Campbell Beach and a CP-Achieve Research Associate.

James’ research and career interests are in physical activity based interventions. James is focused on youth and adults with cerebral palsy and his aim is to explore mobility and functional decline across the life span and how this could be mediated by improving opportunities for community based physical activity.

Understanding mental fatigue experienced by people with cerebral palsy

22 November 2023

Dr Iain Dutia is a lecturer in Physiotherapy at Australian Catholic University and a research officer at The University of Queensland, School of Human Movement and Nutrition Sciences. He is also an Honorary Fellow at CP-Achieve. His main interests are in enhancing physical and mental health in adolescents and young adults with disabilities, and his research to date has focused on increasing participation and enhancing performance in Para sport for athletes with high support needs.

Emotion Regulation, Mood and Mindfulness in Cerebral Palsy

25 October 2023

Dr Ingrid Honan is a Research Fellow and Psychologist at Cerebral Palsy Alliance Research Institute, an Honorary Clinical Senior Lecturer, in the Sydney Medical School, Faculty of Medicine and Health, at the University of Sydney, and a CP-Achieve Chief Investigator.

Dr Hayley Smithers-Sheedy is a Senior Research Fellow at Cerebral Palsy Alliance, Adjunct Associate Professor at The University of Sydney and Senior Research Associate at the University of New South Wales.  She has expertise in cerebral palsy epidemiology, congenital infection, neurodevelopmental disability and consumer involvement in research.

Hearing our voices: Perspectives from CP-Achieve’s advisory group of AAC users

20 September 2023

Penny Manning, Brodie Shaw, Brenton Ponza and Shirls Wong are members of CP-Achieve's One Group, Our Voice, have cerebral palsy (CP) and use alternative or augmentative communication (AAC). They are passionate about sharing their knowledge of CP and communicating with AAC users, especially to help researchers involve AAC users in research.

Megan Walsh is a speech pathologist and CP-Achieve PhD candidate who works with One Group, Our Voice and shares the goals for optimising involvement of AAC users as research partners and research participants.

Developing a roadmap for clinicians in choosing interventions for enhancing muscle impairments and function in children with CP across all functional levels

22 June 2023

Dayna Pool is a physiotherapist, early career researcher, podcaster and clinical lead of The Healthy Strides Foundation. Dayna's clinical and research endeavours have been centred on translating current knowledge into practice to improve the health and well-being of young people with neurodevelopmental disabilities. Having established a clinical service with integrated research and community involvement, Dayna is able to integrate the evidence based clinical practices in both Perth and Malaysia clinics.

Out-of-pocket costs for families and people living with cerebral palsy in Australia

24 May 2023

Georgie Henry is a research assistant at the Cerebral Palsy Alliance Research Institute. She has a background in psychology (honours) and is part of the NSW/ACT cerebral palsy register team. She is passionate about research which improves health outcomes and quality of life for people living with cerebral palsy.

My Voice Library - a database to enable real-time communication solutions for children with cerebral palsy

24 May 2023

Dr Petra Karlsson is an Occupational Therapist with a PhD in Assistive Technology and cerebral palsy and is the Program Lead for Technology and Senior Research Fellow at Cerebral Palsy Alliance Research Institute at The University of Sydney.  She is also a CP-Achieve Research Associate.  Her program of research focuses on bringing allied health and biomedical engineering together, in assistive technology, to support communication, cognitive assessment and functioning in daily activities for individuals living with severe cerebral palsy.

Transition to independent living: perspectives of adolescents and young adults with cerebral palsy and their families

19 April 2023

Dr Lyndal Hickey is a Lecturer – Teaching and Research in the Department of Social Work at the University of Melbourne and an Associate Researcher at CP-Achieve.  Lyndal's research is focused on supportive psychosocial interventions for families caring for a person with a disability or health condition. She has a broad range of professional experience in social work and family therapy clinical practice and leadership, service development, academic teaching, practice-based research, project management and policy development.

Assessing mental health in young people with complex communication needs: project update and consumer perspectives

19 April 2023

Jacinta Pennacchia is a speech pathologist completing her PhD at the University of Melbourne. Her clinical experience is in a specialist school setting for children and adolescents with disabilities, supporting students to have a means of autonomous communication and self-advocacy skills.

Jacinta is currently involved in research focusing on the mental health of young people with cerebral palsy. She looks forward to bringing her clinical knowledge on complex communication needs and augmentative and alternative communication (AAC) into her research around mental health assessment in this population.

Implications of providing wrist-hand orthoses for children with cerebral palsy: Evidence from the Minimising Impairment randomised controlled trial

29 March 2023

Professor Christine Imms is the Apex Australia Foundation Chair of Neurodevelopment and Disability at the University of Melbourne and Founding Director of Healthy Trajectories: A child and youth disability research hub on the Melbourne Children’s Campus. Christine is an occupational therapist, academic and researcher and the Chief Investigator of the Minimising Impairment randomised controlled trial and CP-Achieve.

Ms. Utsana Tonmukayakul is a Research Fellow at Deakin Health Economics and a Research Associate on CP-Achieve. Utsana’s knowledge and skills lie in assessing the economic costs and benefits of health interventions as well as the impact of interventions on quality of life. As an investigator on the Minimising Impairment Trial, Utsana has completed analyses looking at the costs, benefits and impacts on quality of life of providing wrist-hand orthoses to children with cerebral palsy.

Perspectives and experiences of CP-Achieve’s mentorship program: A research study

22 February 2023

Alexandra Cotton graduated from Australian Catholic University (ACU) with a Bachelor of Occupational Therapy (Honours) at the end of 2022. She has recently commenced her new graduate role as a paediatric occupational therapist and is interested in promoting a Neuro-Affirming approach to working with neurodivergent children.

Jordan Koder graduated from ACU with a Bachelor of Occupational Therapy (Honours). He is passionate about youth mental health and research, and hopes to continue his work in that field as he begins his new graduate position as a paediatric occupational therapist.

How cerebral palsy affects muscles, bones and joints

Wednesday 30 November, 2022

Webinar Summary: Cerebral palsy is by definition a condition which affects the brain, yet over time the effects on muscles (contractures) bones (twist or torsion) and joints (dislocation) can be profound. Population based studies from the Orthopaedic Department RCH, based on the Victorian Cerebral Palsy Register, have led to the identification of risk factors and causal pathways. These are very important for screening and guiding management. Musculoskeletal deformities can cause pain, impair function reduce participation and impair quality of life. The role of the Orthopaedic team is to identify problems at an early stage, when they are easier to correct. The long-term goals are to maintain the health of the musculoskeletal system in children and teenagers who have cerebral palsy and to prevent premature "wearing out" and arthritis.

Professor Kerr Graham is an Honorary Professorial Fellow in the Department of Paediatrics at The University of Melbourne and a CP-Achieve Chief Investigator.  He’s clinical and research interests are principally in the area of cerebral palsy, clinical gait analysis, clinical trials of spasticity management, and gait improvements surgery for children with cerebral palsy.

Please note this webinar was not recorded for later viewing

Showcasing Consumer Involvement in CP-Achieve

Wednesday 26 October, 2022 

Doctor Margaret Wallen is a CP-Achieve Chief Investigator and leads the Consumer Involvement theme. Margaret’s research focuses on children and young people with cerebral palsy. As well as working with people to optimise participation in daily activities, Margaret is interested in measurement; evidence-based practice; knowledge translation; and consumer engagement in research. As leader of the consumer involvement theme, her focus is to work with researchers and consumers to integrate the consumer voice into every facet of CP Achieve.

Sevastine Katsakis is a Consumer Coordinator for Young People in CP-Achieve. She is passionate about connecting with people, mental health and overall well-being, especially in children and young adults. She has cerebral palsy herself and therefore is able to use her lived experience and understanding of the condition to connect and empathise with individuals and families. Sevastine has a background in psychology and clinical counselling, graduating with a Bachelor of Applied Science (Psychology) from RMIT University and a Master in Clinical Counselling from Australian Catholic University.

Working with people with cerebral palsy and complex communication needs as research partners

Wednesday 26 October, 2022

Isobel Harman and Millicent Cook are final year Occupational Therapy students at Australian Catholic University in North Sydney. They have been working with Dr Margaret Wallen and Megan Walsh from CP-Achieve as part of their final year placements. They are both experienced support workers for people with complex communication needs

Transition to Adulthood: Issues for People with Profound Intellectual and Multiple Disabilities

Wednesday 28 September, 2022

Michelle King is a sociologist and lawyer completing a PhD in Law at the Australian Centre for Health Law Research at the Queensland University of Technology. Her work is about the operation of law and regulation in practice for people with profound intellectual and multiple disabilities during their transition to adulthood, including in healthcare, the NDIS, Centrelink, banking, and guardianship/administration systems. She is a researcher, educator and advocate in disability law, policy, and practice. Michelle also has lived experience in complex disability and health care as a parent and supporter of her 23-year-old daughter, Daelle, who has profound intellectual and multiple disabilities, including cerebral palsy.

“Finding what works for me” – Supporting gym participation for young adults with cerebral palsy

Wednesday 31 August, 2022

Georgia McKenzie is a physiotherapist at the St Vincent’s Hospital Young Adult Complex Disability Service working with young adults with cerebral palsy to make the transition from the paediatric to adult world. She is a current PhD candidate with La Trobe University and CP-Achieve.

Creative case study method to explore non-verbal and non-ambulant children’s well-being experiences

Monday 20 June, 2022

Dr Dawn Pickering is a physiotherapist and Senior Lecturer at Cardiff University in the UK. Her current post-doctoral research is exploring how to develop a valid observational well-being scale for non-verbal children, starting with observations of the Innowalk. Dr Pickering's aim is to raise people’s awareness of the needs of children with complex disabilities, advocating for their well-being.

How do people with complex communication needs tell us about their mental health and wellbeing?

Monday 30 May, 2022

Jacinta Pennacchia is a speech pathologist completing her PhD at the University of Melbourne. Her clinical experience is in a specialist school setting for children and adolescents with disabilities, supporting students to have a means of autonomous communication and self-advocacy skills. Jacinta’s PhD focuses on the measurement of mental health and wellbeing of young people with child-onset disability and complex communication needs. She looks forward to bringing her clinical knowledge about augmentative and alternative communication (AAC) into her research around mental health assessment in this population.

Effects of community physical activity interventions on adolescents & young adults with disability

Monday 30 May, 2022

Dr Stacey Cleary is a physiotherapist and researcher, currently a postdoctoral research fellow with CP-Achieve. Stacey is passionate about collaboratively working to enhance the health and well-being of young people with disabilities, particularly through community-based physical activity participation. Her research interests are around promotion of physical activity for young people with cerebral palsy, learning from those with lived experience of disability, enhancing environments to allow for physical activity for all, and translation of research knowledge into clinical practice.

I-EAT: Intensive Early Active Treatment for Infants with Cerebral Palsy

Monday 28 March, 2022

Amanda Khamis is a speech pathologist from Sydney, Australia who has worked internationally in the UK, Middle East, and Australia for 15 years. She has developed expertise in supporting feeding and communication for children and adults with complex neurological, chromosomal or syndromic disabilities such as cerebral palsy, autism, and Down syndrome. She has an enthusiasm for life-long learning and is currently completing a PhD, researching swallowing assessments and motor learning-based feeding interventions for infants at risk of cerebral palsy. Amanda continues to work clinically at Cerebral Palsy Alliance, and values life’s simple pleasures, like delicious food and a good chat, and is dedicated to supporting her clients to have the opportunity to safely and successfully experience the same.

Dysphagia in young adults with cerebral palsy

Monday 28 March, 2022

Loren is a speech pathologist based in Sydney, New South Wales. Loren is about to submit a Master of Philosophy through the University of Sydney. Her clinical experience has focused on supporting children and adults with complex developmental disabilities across clinical, community and educational contexts in Sydney. She has a keen interest in supporting people with congenital movement disorders who have complex swallowing and communication needs, particularly infants, young children, adolescents and young adults with cerebral palsy and other related conditions. Loren has provided education and training for the community, family members of people with complex needs, and other health professionals. Loren’s experience also includes clinical supervision and support of speech pathologists and students, as well as lecturing and teaching tutorials at the University of Sydney in the area of "Lifelong disability and dysphagia".

Caring for the Carer

Monday February 14th 2022 

Isabelle’s background includes mental health support, project management, research and public health. When she’s not working, she can be found riding her bike around the inner north of Melbourne, doing a puzzle or tending to her many houseplants.

Georgia is experienced in health promotion and communication the rare disease sector and consumer health and advocacy. Georgia volunteers as a Young Leader with the Consumers Health Forum of Australia. They may otherwise be found cooking up vegan feasts or practising martial arts.

Implementation Research: looking at getting what we know we should be doing into practice!

Monday January 31st, 2022

Stephanie is a qualitative and mixed methods health services researcher currently embedded with Australian Genomics at the Murdoch Children’s Research Institute in Melbourne. At MCRI she is working with clinicians, service leads and community advocates leading research into the implementation of genomics in clinical practice. Other active research interests include international collaborations examining areas such as professional identity, interprofessional working and coproduction.

PREP with Young Adults in an Australian Context

Monday December 13th, 2021

Annabelle graduated from Australian Catholic University - Melbourne in 2020 with a Bachelor of Occupational Therapy (Honours) and completed my honours project in partnership with consumers. Together Annie and Tash investigated the feasibility of implementing an evidence-based intervention Pathways and Resources for Engagement and Participation (PREP) with young adults living in Australia.

Natasha recently graduated from Australian Catholic University with a Bachelor of Occupational Therapy (Honours). Over the past year, Tash worked to implement Pathways and Resources for Engagement and Participation (PREP) with young adults in an Australian setting. This implementation was guided by Annie’s previous research and was also greatly supported by an extended research team. Tash is very excited for her future career as an occupational therapist as she will be able to help people every day.

Resource to Inform Young People with CP About Becoming Research Partners

Monday December 13th, 2021

Grace graduated from the Australian Catholic University with a Bachelor of Occupational Therapy. Grace has also been a support worker for the last four years, where she had the opportunity to learn from many different people. This year, Grace has mainly supported two people with CP, as well as a variety of people with spinal cord injuries - these are two areas of OT she is definitely interested in contributing to, and discovering more about!

Link to Resource: https://www.canva.com/design/DAEsvx66...

Tessa has undertaken a Bachelor of Occupational Therapy at the Australian Catholic University. She is passionate about adult neurological rehabilitation in hospital and community settings, and has interests in burns and amputation. Tessa would also like to further pursue research or assistive technology development.

Sexuality, Romance and Gender when you have Cerebral Palsy and Complex Communication Needs

November 29th 2021

Megan Walsh is a speech pathologist completing her PhD at Deakin University. She attended Northwestern University in the United States for her Bachelor’s and Master’s degrees before moving to Victoria in 2007 and working as a clinician. Her clinical focus has always been on working with people who use Alternative and Augmentative Communication (AAC) and their families, and she is currently involved in research around parent capacity building and AAC. She is currently bridging clinical knowledge and research for better outcomes for young people with cerebral palsy with the CP-Achieve research team.

What Ableism has to do with CP, AAC, Romance and Sex?

November 29th 2021

Dr Darryl Sellwood completed his PhD in 2019 at Flinders University. His research investigated the experiences of people with Complex Communication Needs in romantic and sexual relationships. Dr Sellwood has complex communication needs and uses an AAC device. As a computer science graduate with experience in the telecommunications field, he has a broad perspective on both user and technical issues. His first-class Honours degree project (UniSA) researched telecommunications access for people who rely on AAC. He currently works part time as a Scholarly Fellow at Flinders University, as part of a panel reviewing curriculum in the Disability Studies discipline.

The Who, What, When, Where, Why & How’s of Addressing Loneliness in Young People with Cerebral Palsy

October 25th 2021

Dr Robert (Robbie) Eres is a post-doctoral research fellow at CP-Achieve, within the neurodisability and rehabilitation group at Murdoch Children’s Research Institute. His expertise largely surrounds the social determinants of health and how social factors, including loneliness and social exclusion, exacerbate mental health symptoms (e.g., social anxiety, depression, stress) and contribute to poor physical health outcomes. Dr Eres is experienced in the development and evaluation of digital applications targeting loneliness and mental health variables in vulnerable groups (e.g., young people with psychosis, social anxiety disorders, those identifying as LGBTQIA+). Prior to his current research trajectory, Dr Eres explored the neurobiological correlates related to empathy and moral judgment and decision making. He used neuroimaging techniques to differential functional and structural brain regions associated with empathizing with different group memberships.

Opportunities and Challenges in Paralympic Sport

October 25th, 2021

Dr Iain Dutia is research officer at The University of Queensland, School of Human Movement and Nutrition Sciences. He is also a postdoctoral research fellow at CP-Achieve. His main interests are in enhancing physical and mental health in adolescents and young adults with disabilities, and his research to date has focused on increasing participation and enhancing performance in Para sport for athletes with high support needs. Iain also works clinically as a physiotherapist and has a background in sports injury prevention and rehabilitation.

Navigating the Experiences and Challenges of Caring for Those with Cerebral Palsy

September 27th 2021

Harry Taylor is a medical student with Monash University, currently taking an intermission in his studies. He has been a disability support worker for four years, caring for a client with CP. He is also involved with CP-Achieve through Dr Robbie Eres, assisting in a project looking to gain understanding of the social, mental and physical health of carers of those with Cerebral Palsy.

Mental Health Outcomes Across Childhood in Children with Developmental Disabilities

September 27th 2021

Magnus Ivarsson is a clinical psychologist and a PhD student at Linköping University in Sweden. He has a broad interest in research about mental health, participation, cognitive accessibility, and disability.

Project-TEAM for Adolescents and Young Adults with Intellectual Disabilities

September 1st 2021

Dr. Jessica Kramer is Associate Professor in the Department of Occupational Therapy at the University of Florida, and director of the Youth and Young Adult Empowerment, Leadership, and Learning (YELL) Lab. Dr. Kramer’s research draws upon theoretical concepts and methodologies from occupational therapy, disability studies, education and rehabilitation to: 1) Partner with youth with intellectual and developmental disabilities (I/DD) in the development and evaluation of rehabilitation products; 2) Develop community-based interventions that equip youth with I/DD and their families with the skills to identify and resolve environmental barriers to participation; and 3) Design high quality patient reported outcome measures (PROMs) using contemporary measurement approaches. Dr. Kramer uses quantitative, qualitative, and participatory approaches to design projects that harness the optimal method needed to answer complex research questions and meet the needs of multiple stakeholders, including youth and young adults with disabilities, their families, and rehabilitation professionals.

Pathways and Resources for Engagement and Participation (PREP)

September 1st 2021

Dr. Dana Anaby is an Associate Professor at the school of physical and occupational therapy at McGill University. Dana’s research encompasses the areas of participation and well-being among children, youth and young adults with physical disabilities, with a special focus on leisure participation and the impact of the environment. Her studies, funded by the Canadian Institutes of Health Research (CIHR), involve developing and testing intervention plans to improve community engagement such as the PREP (Pathways and Resources for Engagement and Participation), as well as enhancing measurement tools to assess Participation and Environment for transition-aged youth (such as the Youth and Young adult Participation and Environment Measure, Y-PEM). She also leads Knowledge Translation initiatives; particularly those aimed at promoting participation-based practices. Dana holds the FRQS (Fond de Recherche- Santé) Research Scholar Career Award and serves as the Principal Investigator of a range of clinical trials funded by CIHR, testing the impacts of the PREP approach.

Consumer involvement & Co-Design

June 3rd 2021

Christine Imms is the Apex Australia Foundation Chair in Neurodevelopment and Disability at the University of Melbourne and a Fellow of the Occupational Therapy Australia Research Academy. Her CRE CP Achieve Goals are to progress the participation research agenda and to build a program of research and teams of researchers that can be sustained beyond the life of the CRE.

Joan Gains is a parent with a 27 year old son Nicholas, who has CP and an ID. For the past 20 years, she has been involved with many organisations associated with improving outcomes for people with CP and their families. In addition to the Community Coordinator role, Joan is a trainer and speaker on the benefits of community engagement in research.

The Big Picture: The Context for CP-Achieve

March 29th 2021

This 1-hour webinar will provide information about a range of different projects and activities that are occurring in Australia that provide important context for the CP Achieve program of work. Topics covered will be:

National Disability Strategy
National Disability Research Partnership
National Disability Data Asset
National Disability Research Agenda
The CP Info Project
The ANZ CP Strategy

Followed up by a 20-minute Q&A session.

Bruce Bonyhady is a disability reformer, economist, one of the key architects of the National Disability Insurance Scheme (NDIS) and was the inaugural Chair of the National Disability Insurance Agency (NDIA) from 2013 to 2016. Professor Bonyhady is the father of three adult sons, two of whom have disabilities and in the 2010 Queen's Birthday Honours, he was appointed as a Member of the Order of Australia for services to people with disabilities, their families and carers, and to the community as a contributor to a range of charitable organisations.

Christine Imms is the Apex Australia Foundation Chair in Neurodevelopment and Disability at the University of Melbourne (a collaborative initiative of Apex Australia, The RCH Foundation and the University of Melbourne) and a Fellow of the Occupational Therapy Australia Research Academy. Her research focuses on those with childhood-onset disability and their families, with the goals of learning how to optimise their participation outcomes; development and evaluation of interventions; and development and validation of measures. Her CRE CP Achieve Goals are to progress the participation research agenda and to build a program of research and teams of researchers that can be sustained beyond the life of the CRE.

A Development of Health State Classification System From CPCHILD

February 22nd 2021

Utsana Tonmukayakul is a research fellow and PhD student at Deakin Health Economics. She is responsible for planning, analysing, summarize and disseminate results of economic evaluation of health programs/interventions. Her skills involve conducting cost-effectiveness analysis of randomised control trials and modelling. Her PhD project aims to develop a quality of life measure for economic evaluation in children and adolescents with cerebral palsy.

Hand Deformity and Upper Limb Orthoses for Children with Cerebral Palsy

February 22nd 2021

Simon Garbellini's PhD was embedded within two randomised controlled and multi-site trials; The Minimising Impairment Trial and the Infant Wrist and Hand Orthosis Trial. The results of Simon's PhD will provide support for clinical decision making about the management of hand deformity and upper limb orthosis prescription for children with cerebral palsy. As part of his PhD, Simon refined and explored the validity and reliability of the Neurological Hand Deformity Classification as a tool to guide clinical decision making, including orthosis prescription.

Exploring the Transition Experiences of Adolescents and Young Adults with Cerebral Palsy

December 14th 2020

Bella Clough is a Master of Public Health student at the University of Melbourne with a background in neuroscience. She completed a research project this year with the Transition Support Service Team at the RCH exploring the transition experiences of adolescents and young adults with cerebral palsy.

Introducing the Measure of Early Vision Use (MEVU)

December 14th 2020

Belinda Deramore Denver is an occupational therapist and a candidate within the Doctor of Philosophy program at Australian Catholic University. Belinda graduated from the University of South Australia with degrees in psychology and occupational therapy, and has worked as an OT in tertiary and community paediatric services across South Australia, New South Wales and Victoria. Belinda’s interest in working with children with cerebral palsy and children with vision impairment has led to her research in the area of vision. The primary outcome from her PhD research is the development of the Measure of Early Vision Use (MEVU).

The effectiveness of behavioural interventions in the treatment of drooling for children with CP

Monday, November 30th 2020

Michelle McInerney is an academic and researcher in the Australian Catholic University, and has recently submitted her PhD thesis focused on the topic of saliva control in children with cerebral palsy. She graduated as a speech pathologist with a B.Sc. (Hons) in Clinical Speech and Language Studies from Trinity College Dublin in 2000, and later followed with a M.Sc. specialising in paediatric dysphagia in 2008. Michelle has over 16 years’ experience working in acute medical, community and disability healthcare settings. Her research is focused on individuals with CP and interests include: behavioural interventions to improve swallowing, saliva-control and speech-related outcomes to optimise health and well-being; assessment and measurement; and consumer engagement.⁠

Consumer Involvement in Research: Connections and Participation in CP-Achieve

November 30th 2020

Margaret Wallen's research focuses on children and young people with cerebral palsy. Margaret is interested in measurement; evidence-based practice; knowledge translation; and consumer engagement in research. As leader of the consumer involvement theme, she is working with researchers, young people with cerebral palsy and their families to integrate the consumer voice into every facet of CP-Achieve.

Sevastine Katsakis is passionate about connecting with people, mental health and overall well-being, especially in children and young adults. She has cerebral palsy herself and therefore is able to use her lived experience and understanding of the condition to connect and empathise with individuals and families. Sevastine has a background in psychology and clinical counselling. Her interests for the CRE include engaging the community in the research, increasing participation and improving outcomes, while also reaching people who are not linked in to hospital services.

Victorian Transition Services - What We Do and What to Expect!

November 9th 2020

BARWON HEALTH Clare Hellawell is the current acting Clinical Lead for Barwon Health’s Young Adults Transition Service (YATS) having been with the service since 2016. Clare completed her qualification in Speech Pathology in 2005, and since then has worked in a variety of positions across public health and disability services in Victoria and the UK. Clare thoroughly enjoys working with young people, and is a strong advocate for communication access. More recently, YATS have developed a health literacy skill development program at Barwon Health that targets health independence skills through intervention and real life practice. YATS have partnered with local specialist schools to deliver school based clinics and health literacy group programs which are the highlight of Clare’s work.

BENDIGO HEALTH Robyn Soulsby is the stream leader of the Bendigo Transition Service called Young Adults with Complex Needs. She is an Occupational Therapist with a passion for quality healthcare and helping people to access the care they need and to live their best life as a member of their local community. Robyn also leads other neurological rehabilitation programs in Outpatient Rehabilitation Services at Bendigo Health.

ST. VINCENT'S HOSPITAL Veronica Saunders is the Acting Team Leader of the Young Adult Complex Disability Service at St Vincent’s Hospital, Melbourne. Practising as a social worker for nearly 20 years, Veronica is passionate about supporting individuals and their families to live their best life.

MONASH HEALTH Stacy Kelly is a physiotherapist and the Acting Clinic Lead for the Young Adults Transition Service at Monash Health. She has a particular interest in disability, and worked in paediatrics at the Royal Children’s Hospital and in special education settings before moving to adult healthcare.

Keeping Fit! What Does it Look Like When You are an Adult with Complex CP?

October 26th 2020

James Czencz is a physiotherapist working at Portland District Hospital and is currently undertaking a PhD with the Australian Catholic University, investigating exercise interventions for adults with complex presentations of Cerebral Palsy. His research and career interests are in exercise-based interventions and rehabilitation.

Tackling Transition - Tips and Tricks for a Successful Move from Paediatric to Adult Care

October 12th 2020

Lachlan Dosser is a long standing patient at the Royal Children’s hospital who has recently begun transitioning to more adult suited clinics at Saint Vincent’s hospital. He suffers from cerebral palsy on his left side since birth, he has also recently been diagnosed with epilepsy. He is in year 10 here in Melbourne. Lachlan challenges his disability on a daily basis whether it’s in his champion swimming or as simple as cutting food. He would like to share his story and how he strives to not let his medical challengers define him growing up as he moves into adult hood and his independent medical responsibilities.

Evelyn Culnane leads the Transition Support Service at the Royal Children’s Hospital (RCH) Melbourne. Evelyn’s leadership in the field of transition care has resulted in positive outcomes for patients with complex needs and their families including the implementation of a new model of care for adolescents with an Intellectual Disability and/or Autism Spectrum Disorder with mental health or behavioural concerns. 

A/Prof Adam Scheinberg is a paediatric rehabilitation specialist and is the Statewide Medical Director of the Victorian Paediatric Rehabilitation Service (VPRS). The VPRS provides time-limited, goal-focused services to children and adolescents following illness or injury. As the medical director, Associate Professor Scheinberg is involved in ensuring best practice treatment and translation of clinical research into services provided by the VPRS.

Assessment of Postural Asymmetry in Non Ambulant Adults with Cerebral Palsy

September 28th 2020

Carlee Holmes is the Senior Physiotherapist in the Young Adult Complex Disability Service at St. Vincent's Hospital Melbourne with a particular interest in the postural management of non-ambulant adults with cerebral palsy. Carlee is currently completing a PhD investigating "Assessment and Management of the common postural characteristics in young adults with Cerebral palsy” at Monash University. She has also gained additional certification in Postural Care and Measurement of Body Symmetry.

Efficiency You Say - What on Earth Does That Mean?

September 28th 2020

Rob Carter has many years of experience in the design and application of economic appraisal across multiple settings by using the full range of economic methods and communicating of economic results in policy relevant ways. His research interests are economic appraisal of health care services and priority setting. Rob’s goal for the CRE is to encourage clinicians and academics to work with stakeholders and policy-makers to bridge the gap between academic rigor and applied policy-making in major areas of health related to CP with a strong focus on knowledge transfer.

Paving the Way for Adolescents and Young Adults with Cerebral Palsy

August 31st, 2020

Dinah Reddihough, CP-Achieve Principal Investigator

Professor Dinah Reddihough had many years' experience as a paediatrician where she was involved in the clinical care of children with disabilities, particularly cerebral palsy. She is now concentrating on her research program. After leading a successful NHMRC-funded Centre of Excellence in Cerebral Palsy over the years 2014-19, she is now heading up CP-Achieve which will address the health and social inequities of adolescents and young adults with cerebral palsy, a growing population known to be significantly disadvantaged.